From Lyme to Alpha-Gal: The Latest on Tick-Borne Diseases
People's Pharmacy radio interview with Dr. Spector, Dr. Mozayeni, and Dr. Platts-Mills.
Worth a listen! We get an update on Bartonella, Lyme disease and alpha-gal allergy. Interview starts at the 6 minute 25 second mark.
The first interview is with Dr. Neil Spector, (8 minute mark) the cancer researcher that was misdiagnosed for 4 years and underwent heart surgery before an accurate diagnosis of Lyme Disease. He is the author of the book "Gone in a Heartbeat: A Physician's Search for True Healing". A few topics he covered.
- If not diagnosed and treated very early, some feel within 72 hours of infection, that the borrelia bacteria is able to find refuge in sanctuary tissues. These are often the connective tissues that are found in joints, fascia and brain and are less susceptible to antibiotic treatment. - The town/gown debate between the clinicians treating the patients and the researchers continues and makes it more challenging for both patients and clinicians. - There is no test for chronic Lyme. - Some patients may require longterm antibiotics for persistent infection and in others, it may actually be harmful if there is an autoimmune process involved. 5. NIH needs to spend more money on research. www.neilspectormd1.com
The second Interview is with Dr. Mozayeni, (the 20 minute mark) founder of Translational Medicine Group in Bethesda, Maryland, www.tmgmd.com and also the Chief Medical Director at Galaxy Labs, www.galaxydx.com the laboratory specializing in Bartonella diagnostics. His focus is on chronic inflammatory conditions and identifying the root cause of the condition which is often but not always chronic infection. In this interview he talks about the complexity of understanding the chronic inflammation process and refers to it as small vessel disease. There are many tests available but also many caveates that go along with each of those tests. Symptoms are quite variable including, chronic fatigue, pain, arthritis, neuropthic symptoms, loss of executive functioning. This chronic inflammatory state results in adrenal exhaustion which leads to a host of other symptoms. Bartonella is a stealth pathogen that is prevalent and slow growing. In many Lyme patients it can be the predominant infection. They look at inflammatory markers in evaluating patients and in determining treatment outcomes. He also considers the host response which includes how individuals respond to the infection, methylation pathways and response to treatments. He thinks that heart disease may be a chronic smouldering infection. He feels there is hope for patients with chronic infections but it is a time consuming and costly process and is very challenging for both the clinician and the patient. He feels the keys to staying healthy is to keep things in perspective, stay balanced, reduce stress.
The last interview (the 37 minute mark) is with Dr. Thomas Platts-Mills, a Professor of Allergy and Clinical Immunology at the Universtiy of Virginia. https://med.virginia.edu/faculty/faculty-listing/tap2z He discusses the meat allergy that some patients acquire after exposure to the bite of the Lone Star Tick. This allerigc response in individuals is due to elevated levels of IGE, an immune response, to a sugar that is found in the proteins of lamb, beef, and pork. Some individuals have extreme sensitivity while others do not.
I hope this short summary of this interview has been helpful. Please forgive me in advance for any mispellings or unintentional errors. This post is not intended to diagnose or to provide medical advice in any way.